Cancer wonder drug saves 26-year-old Jess Pereira life cost her $ 7,500 per month, she will run out of money to pay for it christmas.the Newlyweds secretary is uneasy, knowing that if she had lung cancer drug will only cost it 37, $ 70 a month.
Jess can not access government funds for drug Crizoib because it has a rare blood cancer and grants applies only to lung cancer patients.The public finances increased to pay for medicines, enough for only one prescription and Jess appeal to the Minister of Health Sussan Ley to end inequality patients .I facing rare cancers do not understand how cancer can be two equal treatment prescribed by a miracle - but because he is my 'precious' I punished, he said says.Ms Ley said the government is currently working with manufacturers of drugs to improve opportunities Australia the list of medications for patients with rare disease.The government has committed itself to the list of medicines recommended pBAC without fear or favor, although there are a small number of patients with a rare disease.However, we also want to ensure that Australians were rare disease downside trade barriers due to small number of patients or difficulties running clinical trials are necessary for their marketing. 'Jess is one of 42,000 patients diagnosed with a rare cancer each year, only a disease so rare, six people per 100,000 develop them.Many of these people are denied access to lifesaving treatment because of our Pharmaceutical Benefits Scheme is not flexible enough dealing with rare diseases.Chemotherapy and radiotherapy could control cancer Jess and four tumors continue to grow again in its entire body.Her anaplastic large and her doctor thought it would be worth trying another drug for ALK positive cancer - lung cancer. After starting Crizotinib in June PET examination showed that all tumors disappeared completely Jess pharmaceutical company give Jess with the first month free medicine to give her time to collect money for the subsequent doses.Jess create a fund raising account atwhich raised $ 23 000, but most of that money is already medication.The spent on cancer was all over my body, rather than dramatically decreased in the month, Christina (doctor) was shocked, says Jess.I feel powerful, I can catch public transport again and hope to start work next year, said says.Jess fear that cancer will come back when it runs out of money to pay for medicine for Christmas.I'm fear of the future - Crizotinib is the only drug that has begun to help, but public funding I have relied on rare species Australia Cancer is running out, 'said says.She have no home, she can sell and almost no income she can access travel funds .directory rare cancers Australia Richard Vines says Jess cancer is so rare, only 20- 30 Australians contract the disease each year.This means that there is a fair amount of patients at the start of clinical trials and pharmaceutical company must receive supplemental to approve the use of drugs in this disease.These people are completely out of the system, and the only way they can afford to treat them to fund raise, 'the says.It is a terrible way for anyone to live, the system has failed completely,
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